Tag Archives: autism spectrum disorder

From housing model to home: five years later.

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Through the grove beside the pasture, a well-worn path now leads down the hill to Home

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and another worn footpath, now the shortcut to Ray, Pete and Brent’s house


In the summer of 2010, we painted the newly rehabbed 4 bedroom house a
forest green. We fenced two acres of pasture and moved in two alpacas, five cashmere goats and a bunch of chickens. Over the next 10 months we got to know eight (yes 8!) pretty cool guys and their families. 

Five years later, and these same eight guys are still around.  There are five guys living here at a time now, here on the Hill.. in two different houses.  All eight of the guys have spent time living with each other here.  Some have left… and returned, left again… or moved to their own apartments, or gone home with family for health reasons. But still… on Wednesdays and birthdays, most of the original 8 guys are together. Celebrating milestones together, working together (well, a little!), going on trips together, hanging out on market day in the Juniper Hill booth together, talking together, eating together, just being good friends… together.

June 2015 Celebrating Patrick's one year anniversary in his own apartment!

June 2015 Celebrating Patrick’s one year anniversary living in his own apartment!

The ease of their interactions is obvious… how sensitive they are to each other’s moods, and how much they care if someone is not having a good day. The support they give to each other, the shared humor, shared food, and shared history.  The brotherly bickering and how quickly it gets resolved. The level of confident independence at which they move through their day … with each other for company and support.

Five years ago, we began as a Housing Model.  We are a family now, and Juniper Hill Farms is a Home. It’s different, and it comes with complications.

For the last five years, the slide below has been the final point made in the Juniper Hill Farms presentations that I’ve done for family groups, housing, or autism organizations.

‘Our goal is to help other families feel capable of creating a living situation like this for their family member’

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Seriously, ‘Our‘ goal?  Wait, let me check with the guys.  Hmmm I don’t think so.

It was, and still is one of MY goals. Learning from these guys about life? It’s still exciting every single day.  I laugh, I get frustrated, I philosophize, I have fun.  Every experience with them shapes the story of how to create a life of ‘inter’dependence and happiness for an adult with autism… a story that will hopefully encourage other families to give it a try. In five years, the learning curve has not leveled off, not in the least. It continues to show the increasing complexity of an independent life with autism, and how rich that life can be for them as well as for everyone around them who is lucky enough to be along for the ride.

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Celebrating Michael’s birthday (really Ray is having fun!)

The guys, however? They now have other interests. And priorities.They really just want to get on with their lives.

We had so many visitors that first year.  We had an open bedroom so that we could welcome interested guys who were looking for more independence and who wanted to see what that felt like for a week or two, or a month or two. Its scary to just make a move… much easier to just test the waters. So just come to Juniper Hill to try it out!  It was a really good idea, at the time.

We also had families and groups of people from related fields visiting to see what we were doing.  The guys were used to strangers coming in and out.

and actually … well, they were strangers as well!

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Check out this year’s new variety… Greenburst!

Brand new to the living situation, we all did the best we could. There were not a lot of established routines that first year… everything was a trial run and we worked out kinks every day.  We learned how to take care of animals and we tried to grow sunflowers. We had dinner together every night, went on fun trips together, argued and worked things out. We became friends with the staff, and with each other. Semi-organized chaos, that first year or two.

Then slowly, things began to change.

First the comfort level, then the trust, began to build.  That’s when everyone started to get their own ideas about things.  They started talking to each other, instead of just to the staff and me.  They made their own plans.

Fast forward five years. It’s now September, 2015!

IMG_4048These days, what we have on ‘the Hill’ is  community.  And we have a home, and a family. It is not that different from most other people’s homes. Everyone here has a life that involves getting out into the wider community every day.. where they work, volunteer, exercise, shop and eat.  Just like most people.  They come home each day and sit around the dinner table and shoot the sh*t. They grab a bowl of ice cream, their IPad, or ‘their’ seat in front of the TV and watch movies.  Or documentaries.  Or animated funny stuff with raunchy jokes. On weekends they sleep late…. hang out with the animals… take care of their home…walk to the creek. Just like most people.

So… what’s the problem?

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yes.. this is the staff schedule in the house.

Try to imagine people showing up in your kitchen at 9 in the morning. Every. Single. Day. 9AM. When you just want to grab a glass of orange juice in your Hello Kitty pajama sweat pants and go back to bed and read a book  (hey, there is more than just one of us with Hello Kitty pajamas..) We love the staff.  Just not always at 9AM.

And how about MEETINGS??  Looking forward to coming home from work in mid-afternoon and taking a nap on the couch?  There are five people who are a part of your housemate’s ‘team’ sitting on it already. YOUR couch, not theirs.

and WEDNESDAYS!!  When our best friends come over,  and our former housemates.  and each person’s staff.  and people doing community service.  and volunteers. and everyone is trying to talk at once and the house is not big enough and people are trying to cook lunch and staff are catching up with each other and both bathrooms are OCCUPIED at the same time and no one really feels like ‘volunteering’ anymore because they just want to hang out. and EAT. No wonder it’s sometimes the day of meltdowns and hiding in bedrooms. But.. we LOVE Wednesdays too. Wednesdays are how we BECAME this community. (and we do get some sunflowers planted…. and watered…).

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Meet Ethan! He came to visit the farm with his parents this summer, and stayed to try it out for a few months. He is now well known as ‘the chicken guy’ at the market. And he is going to settle in with us for the winter, at least!

Families call regularly and ask to visit the farm. There are so many young people on the spectrum who are coming of age and want to have a life independent from their parents.  There are also so many aging parents who wonder what plans to make for their adult child. Farm life sounds good to many of them, and most people want to see it for themselves.

So we are planning better now.  Most meetings can happen at Starbucks (better coffee too), or the supports coordinator’s office, or outside on the picnic table.  (Anyplace but the couch.  Or the kitchen table!)

and visitors.. feel free to come on Wednesdays… we will feed you! and occasionally during the week we will sneak you in when it’s quiet.  Just don’t come on the weekends, that’s pajamas time.

IMG_5363We look ‘bigger’ on the internet… on this blog, our Facebook page, our YouTube and Instagram.  We look ‘bigger’ in pictures.. pictures of sunflowers, and pictures of great food, pictures of our booth at the weekly farmers market, and group photos with our animals and friends.

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5 years later, and the furniture is looking well used. This is where Andy’s heel sits.

Really… we are just a home.  Not so different from yours. It gets kind of confusing  to entertain so much of the time.

and…well…. we don’t always want to dust. That’s all.

See you on…… Wednesdays!

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Yesterday, this black swallowtail butterfly emerged from its cocoon. We have been watching it all week! It seemed like a good metaphor for this post.

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The Pursuit of Happiness: Juniper Hill Style

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Ray was gone for three hours in the adjacent woods one afternoon this week. Three hours!  I was just about to go looking for him when he came trudging

Ray's pond in bloom, 2013

Ray’s pond in bloom, 2013

back in rubber boots, cart full of interesting stream rocks to put around his pond, net in hand, and his container with two crayfish and a salamander.  He added the creatures to his pond that we finished last summer, and told us his ‘fish stories’.

Michael called this week, excited about his new place… asking advice about laundry, budgeting, relationships, and planning our summer trips.

John, chef extraordinaire,  sat for an hour yesterday reading recipes from a new Mexican Cookbook and talking about ‘catering’ a private party for a friend.

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Brent’s potato harvest 2013

Brent and Pete rototilled and planted their own bed of potatoes at the top house on Thursday, even though we have a big bed of potatoes planted for everyone down here at the main house.  They just wanted their own patch of potatoes.

And Andy, well he changed his view this week. Each evening he sits outside on HIS chair at HIS table on the patio before dinner, quietly contemplating, with his various personal trinkets and pebble piles on the little tile table. For over a year now, he has been sitting facing the side yard where the angora rabbits are.  And this week, he rearranged and changed his seat to watch the evening sky and forested hills over the sunflower field… it really is pretty this time of year. He came in first and announced it. ‘I want a different view, I am rearranging the patio OK?’

These are the kind of things happy people do, I think.  Right?

I mean, these guys do struggle with anxiety and sensitivities and impulse control. They never have enough spending money.  They complain about their housemates.  They don’t have jobs that give them enough hours or jobs that are steady. They all have dreams that have not yet been met.

But I really believe that they are happy. There is always something that they are unhappy about each day. But lots of times if asked, they say they are happy with their lives. And happy people, they care about the view.

I’ve given this a lot of thought this past month, because we were asked to speak at a conference about ‘happiness’.  And this is what I truly feel, so I’m sticking to it.. for now! dff-logo Last Saturday the guys and I presented at the  ‘Autism and The Pursuit of Happiness’ conference given by Dragonfly Forest, a camp for children with autism and other disabilities.  When they called us a few months ago and asked if we would all ‘present’, I hesitated.  Well, the guys don’t actually … ‘present’,  I tried to explain. But I thought about it and decided to give it a shot.  I wasn’t sure how we would all have on our happy faces for that day…  but that’s not really what happiness is all about anyways, right?

So I came up with a powerpoint presentation highlighting the things that I think have contributed to the guy’s ‘life attitude’, be it happy or not, and piled everyone into the van for the ride early on a Saturday morning (a miracle in itself). We were lucky to have our own corner in a quiet side room, with a table on which we could put our important ‘stuff’ during the conference.  Michael arrived and announced that there was NO WAY he was going to stand up in front of a bunch of strangers and talk.  Rebecca wasn’t feeling 100%.  Andy had stayed up all night and didn’t come at all. Brent brought a blanket to sell, and that was all he was concerned about.  And Ray brought Lego creations.  He was ready and willing to ‘present’ his Lego stories. I told them all that I would pay them 10 bucks if they would at least sit in the room while I talked, that it would be nice for folks to see who they were and maybe ask a few questions and they could answer if they felt like talking.  So they all decided to make the effort and go outside of their comfort zone for an hour.. for 10 bucks.

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It. was. amazing.  It was either the most outlandish/uncomfortable presentation for the audience… or the most amazing /best ride ever.  The guys mostly did it themselves… with me just clicking through each powerpoint slide and saying a few words before the guys cut in and told everyone the story behind each slide. Michael, who had intended to leave as soon as he arrived because he ‘was not going to stand up and talk in front of people’… jumped up at the first slide to talk about the photo and how it was one from the first year we were together … and he was the one who led everyone else, standing the whole time in the front of the room leading the conversation.  Really. I loved it.  These guys rock.

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They reminisced about good times.  They were unorthodox.  They argued. In the middle of the presentation, they excused themselves and went outside to work out their differences and came back in five minutes best friends. They talked over each other.  They laughed with each other. And they were occasionally R-rated… talked openly about sexuality, bullying, abuse, and living in a residential facility.  Rambled on and on in detail about Lego creations and why each part went where. And they told the story of their lives together the past four years, talking off of the slides that had the memories…  the trips we have taken, the meals they’ve learned to cook, our animals, selling sunflowers at the Farmer’s Market, and their staff, their wonderful support people.

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And every so often during the presentation, Brent would raise his hand.  And then he would come up to the front of the room and stand next to Michael… holding the blanket that he was crocheting….  and he would say ‘I making blanket IMG_1375bigger’ and then look at me… and I would tell the audience, each time, that Brent crochets blankets and sells them, and he wanted everyone to know that he had one for sale for $35 at the table in the hallway.

And of course, after the presentation someone bought the blanket.

It was a great day. I am very very happy.

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Andy’s view